Cohort study of community participation of people aging with long-term physical disabilities
We conducted a longitudinal cohort study of 474 people aging with long-term physical disabilities to examine the multiple interconnected factors (e.g., physical, behavioral and environmental) affecting participation for this population. Participants were aged 45-64 and had a self-reported physical disability for at least five years. They completed an annual survey on their health and participation for three years.
Status
We have completed the cohort study and data analyses; some of our most notable findings have been published in peer-reviewed journals and are available on our Selected Publications page. We also have infographics highlighting study findings.
Feasibility study of an evidence-based intervention to promote participation for people aging with long-term physical disabilities
We adapted and tested an evidence-based home modification and self-management intervention for people aging with long-term physical disabilities. This project consisted of a randomized controlled trial of the intervention, Removing Environmental Barriers to Independent Living (REBIL).
Status
We developed REBIL and tested the program with 50 participants recruited through MADRN organizations. We have published papers describing both the protocol and the results of the study.
Home hazard removal program through MADRN (HARP MADRN)
One of the most striking findings from our longitudinal cohort study was the high rate of falls among participants, who were in a younger age group than is typically associated with falls. MADRN member organizations also noted that falls were a concern for their clients who are aging with disabilities. Therefore, we decided to test the Home Hazard Removal Program (HARP) with people aging with long-term physical disabilities recruited through MADRN organizations.
Status
The HARP MADRN study has been completed. We are now running data analyses and preparing a manuscript for publication.